All is Phair in Love and War

This is my life. From my children to vintage house projects to living day to day with a chronic life-changing disease. This is me.

Month: September 2016

Missing Missouri

I miss Missouri. Everything about it.  There is nothing like going home. Especially my tiny home town. Going to the antique store and running into your childhood friend’s mom. Or going to your cousin’s wedding and its like you never left for all of these years. Watching my brother and my dad play catch in the back yard like we are kids again. Watching the Royals World Series Parade from last year, because my dad is still obsessed 🙂 Going to the grocery store, gas station, or literally any where and half of the people are wearing Chiefs or Royals gear. I feel such a sense of completeness that I can’t explain. This trip, I got to watch my little cousin play flag football on the very football field that my dad played on in high school.

Times like these make wish I could freeze frame time.



The waiting game

Here we go again. Waiting for my second right heart cath to determine if my medication has slowed down the progression of this terrifying disease they call pulmonary hypertension

As I’m sitting here staring at this empty room, I get a sweet text from a good friend with the bible verse Isaiah 41:10 

So do not fear, for I am with you;   do not be dismayed, for I am your God.

I will strengthen you and help you;

    I will uphold you with my righteous right hand.

Always a beautiful reminder to know that God is with us through it all.

#pulmonaryhypertension #PH #PHaware