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November is known as Pulmonary Hypertension Awareness Month. A purple colored (periwinkle) ribbon symbolizes PH.   I submitted the following email to my local County Commissioners hoping to get a proclamation to declare November as “Pulmonary Hypertension Awareness Month”.

Good Afternoon,

My name is Danielle Taylor and I have Pulmonary Hypertension. I am writing in hopes that you will declare November as “Pulmonary Hypertension Awareness Month.”

 

Pulmonary Hypertension (PH) is a rare, and often misdiagnosed, chronic, life-threatening lung disease which cause the heart to fail. Without treatment, Pulmonary Hypertension patients live 2.8 years after diagnosis. 

 

There is currently no cure for PH. I am part of a non-profit organization called the Pulmonary Hypertension Association (PHA) which is seeking treatment, a cure, and awareness for this llife-threatening disease. 

 

If you would, please help me spread awareness and support throughout our community and proclaim November as “Pulmonary Hypertension Month”. 

 

Very Respectfully,

Danielle Taylor

New Braunfels, TX 

(830) 377-9962

My request was denied due to the fact that there is not a local organization in Comal County. I am dumbfounded. It is a rare disease, of course there isn’t a Comal County PH club. There are only 4 chapters in the US: Northeast, California, Midwest, and Lone Star(based out of The Woodlands). If anyone has any advice on how to get this declared, please email me! To learn how you can raise awareness, please visit http://www.phassociation.org/Awareness. Also, please share this photo in the month of November and use the hashtag #heart2curePH